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CURE TREATMENT PREVENTION GENERAL

I have an upcoming conversation about HIV cure research

 
Among colleagues we often speak in jargon. This makes communication fast and efficient because we use the same language.
 
But in a conversation with someone without a medical background, a different approach is needed.
The following pages help you communicate complex information about HIV cure research in an understandable way. Here you will find practical tips, explanations for simplifying medical terminology, and references you can use during the conversation or when writing a lay summary.
 
 

To prepare well for the conversation, I would like to review the following information:

 

Select the topics below that may help you prepare. 

 
The selected topics will automatically appear in your personal reading list. You can go through them one by one at your own pace, whenever it suits you. It does not have to be all at once. If you return to the site later on this device, you will simply continue where you left off. 
 

Awaiting an HIV cure

How can I adjust expectations?

Learn how to manage expectations and advise people waiting for an HIV cure.

Conversation tips

How should I start the conversation? 

On this page you will find tips and tools.

Lay summary

How do I write a clear lay summary?

Learn how to make your research clear and engaging for a broad audience.

Participating in HIV research

How can someone sign up for studies?

This page provides a list of  (clinical) HIV research studies.

Support services

Who can provide additional support?

Does your patient need extra support? Find out who you can refer them to.

Meetings

Attending an HIV meeting

Discover where people with HIV and medical professionals can meet and share experiences.

Frequently asked questions

How do I prepare for questions?

A number of frequently asked questions from the HIV community have been collected. Read through them so you can enter the conversation well prepared. 

Dictionary

How do I explain difficult terms?

In our dictionary we explain difficult terms as simply as possible.